Today I took our 4yr(almost 5yrs) old to our standing Monday counseling appt. We've been doing this for over three months. At the prodding of the PCIT teacher, I asked the counselor today what diagnose(s) we are looking at for our daughter. Hold onto your hat:
Brain Damage-permanent (due to trauma, neglect, and/or FAS/FAE)
Developmental Delay-permanent (due to trauma, neglect, and/or FAS/FAE)
Attachment Issues (not RAD)
ADD (meds will help)
She also feels our daughter has FAS/FAE, but she is not qualified to diagnose that. She is looking for other hospitals in our state that can evaluate that so we can have this diagnosed before the seven month wait for UW. She feels FAS/FAE answers all our questions about our daughters delays, problems, behaviors, emotions, conversations, etc. She said she would be shocked if she doesn't get a FAS/FAE diagnosis. That would be great, but shocking.
Additionally she feels our daughter has Post Traumatic Stress Disorder, but the DSM-IV changed and has a new requirement: daily flashbacks, which our daughter does not have. But she does have PTSD according to the old diagnosis. Also she feels she has multiple personality tendencies, but that can't be diagnosed until an older age. There's another clinical name now for multiple personalities, and I forget the name. She said to have full blown multiple personalities, you have to have one personality that is deviant, destructive, and not attached to anyone. She feels our daughter is bonded with me and her sister, so feels it's "only" multiple personality tendencies.
I'm not surprised at some of this, but I'm shocked at other aspects.
This counselor has had some recent unpleasant conversations with the state SW. He is not pushing for diagnosis(es) because if those go on her permanent record, and we disrupt, there's about a 99% chance she will never be adopted. There's not droves of people waiting in line to adopt a kid with all these medical/health/emotional/behavior permanent issues. So they want us to finalize the adoption before there are any diagnosis. Wrong pal. The counselor told this guy to get honest, and we are entitled to that. We are also entitled to the state paying for all her medical bills (and surrounding issues) once she is diagnosed, so we have to get the evals done before adoption finalization. My husband and I want our daughter provided for in as many ways as possible. Medicaid doesn't cover everything, so we need to have her evals done and the state issue permanent funding. I'm not even sure at this point if that's thru Social Security or grants, but it has to get taken care of. I shudder at the thought of dealing with SS over all this.
I'm going to put the girls down and take a nap myself. I'm a little overwhelmed. I may not have written in coherant sentances above.
Monday, January 7, 2008
Diagnosis
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8 comments:
We had a geneticist diagnose our daughter's FAS.
Goodness that is a heavy list of possible diagnoses for such a little girl! That SW has it backwards. If they would be open and honest about what really ails a child there would be less disruptions. People would not get blind-sided with issues they are not ready or able to handle. Isn't it supposed to be about the BEST placement for a child and not just how many you get placed????
I would need a nap after explaining all you did and receiving this very intense information. This is a lot to deal with.
Hugs....... that is so much to digest and take in.
I, too, would be overwhelmed after receiving such news.
It is devastating that such a little girl has undergone so much abuse that has, ultimately, led to all of this.
My heart goes out to you and her.
WOW! Heartbreaking. Hearing situations likes your daughters make me FURIOUS!! Neglect and trauma? Anyone fit or unfit can have a baby, grrrr...
Why do you feel you need a dx before the state will pay? Will you get medicaid when you adopt?
I do agree that you need the level of care raised to get a higher subsidy. I can also totally understand why you want dx's up front but am not seeing what you are saying about medical. Maybe your state is different from mine.
MPD has been changed to DID (dissociative identity disorder). Not sure why the counselor told you she had to have a personality that was destructive to have this diagnosis, though, as it is not true. It certainly sounds like, from the name changing, the wanting to be a different person and commenting that she hates "X" that she does have childhood DID. It's not especially uncommon and is cureable throught trauma resolution.
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